With the success of the 2009 conference which was our 6th conference held in the USA, the International Costello Syndrome Support group in the UK is pleased to announce our first UK conference.
The event will be held in London at a venue yet to be announced. 
The proposed timetable
September 8th 2010 afternoon / evening.
Meet at the hotel, chat and drinks.
September 9th 2010
UK conference Day.
September 10th 2010
Families will be joining with there cousin syndromes on the same genetic pathway at the House of Lords.
We aim to bring together CFC syndrome, Noonan Syndrome, Neurofibromatosis type 1. The aim of the event is to raise awareness of this group of developmental syndromes, collectively known as the ‘RASopathies’. The Event will also see the launch of the UK RAS-Pathway network.
September 11th 2010
The aim of the final day is to have a group family day out, enjoying the sights and sounds of London.
The event is open to any CS / CFC family who wish to attend.
Pricing and hotel information will be announced shortly.
Carol Rettie 
Hi all,
i have been told my daughter has c/s and this was in 2000. I do keep an eye on this site to see updates but am not very good at communication. ( SHY ) We as a family would love to come to the london conference and the proposed dates are suitable.
My Daughter Emily McCullough was born on the 16th of september 2000 and being her 10th birthday this year and the conference being held in london, would it be checky to ask for the conference to be moved forward a week being as it has not been confirmed.
This would give Emily a great birthday present and me a chance to open
Many thanks
Mark McCullough