About Costello syndrome
We’re an “e-grass-roots” parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children.
But most of all we provide a support network through which families can share there own experiences and support each other through a mutual understanding. Whatever you learn from this site.. “….don’t stop asking questions!“ The answers may surprise you.
Many thanks for dropping by.
Please read and download our parent Brochure
You can either print the pages from the flip book, or download the PDF file below:
Hola Colin!
Greetings from Buenos Aires!
I am contacting you because we need to make the molecular tests to my son Matias, in order to confirm if he has the CS. There is no laboratoy in Argentina, so I would like to check if you may recommend us any laboratory where we can do the test. I’ve also been told that there is a way to get financial assitance as our medical assurance probably will not cover this.
Thanks in advance for your time and help!!
Regards,
Alejandra & Matias