With the success of the 2009 conference which was our 6th conference held in the USA, the International Costello Syndrome Support group in the UK is pleased to announce our first UK conference.

The event will be held in London at a venue yet to be announced. 

The proposed timetable

September 8th 2010  afternoon / evening.
Meet at the hotel, chat and drinks.

September 9th 2010
UK conference Day.

September 10th 2010
Families will be joining with there cousin syndromes on the  same genetic pathway at the House of Lords.

We aim to bring together CFC syndrome, Noonan Syndrome, Neurofibromatosis type 1. The aim of the event is to raise awareness of this group of developmental syndromes, collectively known as the ‘RASopathies’. The Event will also see the launch of the UK RAS-Pathway network.

September 11th 2010
The aim of the final day is to have a group family day out, enjoying the sights and sounds of London.

The event is open to any CS / CFC family who wish to attend.

Pricing and hotel information will be announced shortly.