It has been a long road but the end is close. For the first time in the UK a joint conference is being held for both Costello syndrome and CFC syndrome. This promises to be an amazing event. Planned around family’s coming together and meeting often for the first time with others. For children to meet with others who understand each other. At the same time doctors and researches will be presenting to the families and will be on hand to answer questions.
For more information of the event, to see the program or book your hotel, please click the conference link above, and we look forward to meeting with you all soon
